Now showing 1 - 10 of 16
- PublicationSubmission to Oireachtas Special Committee on Covid-19 Response: Nursing Homes and Other Institutional Care Settings: A Framework for Examining the State's Response to the Covid-19 Pandemic(2020-05-27)
; ; ; ; ;We write to propose a human rights-based framework for the examination of the State’s response to the COVID-19 pandemic as it has concerned and continues to concern people in nursing homes and other institutional (or, ‘congregated’) care settings. 237
- PublicationAge Related Inequalities and Covid19(2020-09-23)Invited speaker to Social Work in the Community first webinar on Covid and Inequality, Collaboration between Department of Health(NI) and University of Ulster.
- Publication'It Took a Leap of Faith.' Care and Connect: A Model for Practitioner Research in Ireland(2016-12)
;Irish social work has been slow to develop a research culture and professional structure to support research capacity. International literature suggests that one of the major reasons for the lack of research activity amongst social work practitioners is the absence of collaborative links between university based researchers and social work practitioners in the field (March and Fisher 2005; Shaw 2003:2005; Gibbs 2001). In 2006, senior staff from Tallaght Hospital, Dublin and the School of Social Work and Social Policy, Trinity College Dublin, recognised the need for a strategic approach for the promotion of research capacity and activity amongst social work practitioners. This paper discusses an academic/hospital partnership project "Care and Connect", that sought to explore the opportunities for developing practice based research in a health care setting in Dublin. 203
- PublicationHow are people with dementia involved in care-planning and decision-making? An Irish social work perspective(Sage, 2018-03-15)
; ;In recent years, there have been national and international policy advances around capacity and decision-making and an apparent burgeoning rights-based approach to the issue, all of which have the potential to impact on the experience for people with dementia in Ireland. There is little evidence however on whether these policies and principles are being translated into practice and whether traditional paternalistic approaches to decision-making are being challenged. To gain insight into current practice, research was undertaken with social workers working with older people in Ireland; reporting on the involvement of people living with dementia in care-planning processes. Data collection included a mixed method approach; an on-line survey of social workers from across the country who reported on their open caseload during the month of June 2015 (N = 38 social workers reporting on the experiences of 788 older people, of which 39% of older people had a formal diagnosis of dementia). In addition, semi-structured telephone interviews were conducted with social workers working in the nine Community Health Organisation areas (N = 21). Findings show that people with dementia were high users of social work services, accounting for 44.5% of the client group. Social workers reported that there were no standardised approaches to how Health and Social Care Professionals involved people with dementia in care planning and decision-making. Overall, people with dementia were more likely to be excluded from decision-making processes due to (i) assumptions that they lacked capacity, (ii) family members preferences that the person was not involved, (iii) communication difficulties, (iv) time constraints, (v) little or no opportunity given or (vi) the person delegated decision-making to others. Good practices were identified through multidisciplinary team approaches and formal care planning meetings. This research highlights variability in how people with dementia participate in decision-making around their care. It sheds light on existing barriers which challenge the full implementation of the Irish Assisted Decision-Making legislation; highlighting the need for appropriate guidance and education for Health and Social Care Professionals. The findings also show that family dynamics and existing relationships can play a role in how people with dementia participate and are involved. To ensure consistent opportunities for participation, effective practices and approaches to supporting the participation of people living with dementia in care planning needs to be developed and rolled out in all care settings through increased training and adoption of standardised approaches. 1276Scopus© Citations 29
- PublicationWhat are the mechanisms that enable the reciprocal involvement of seldom heard groups in health and social care research? A rapid realist review protocol(Health Research Board, 2018-02)
; ; ; ; ; ; ; ; ; ; ; ; ; ; ;Background: The University College Dublin (UCD) PPI Ignite Connect Network will fundamentally embed public and patient involvement (PPI) in health-related research, education and training, professional practice and administration in UCD’s institutional structures and procedures. A significant focus of the programme of work is on actively engaging and developing long-term reciprocal relationships with seldom heard groups, via our ten inaugural partners. Methods: This rapid realist review will explore what are the mechanisms that are important in actively engaging seldom heard groups in health and social care research. The review process will follow five iterative steps: (1) clarify scope, (2) search for evidence, (3) appraise primary studies and extract data, (4) synthesise evidence and draw conclusions, and (5) disseminate findings. The reviewers will consult with expert and reference panels to focus the review, provide local contextual insights and develop a programme theory consisting of context–mechanism–outcome configurations. The expert panel will oversee the review process and agree, via consensus, the final programme theory. Review findings will follow the adopted RAMESES guideline and will be disseminated via a report, presentations and peer-reviewed publication. Discussion: The review will update and consolidate evidence on the mechanisms that enable the reciprocal engagement and participation of ‘seldom heard’ groups in health and social care research. Via the expert and reference process, we will draw from a sizeable body of published and unpublished research and grey literature. The local contextual insights provided will aid the development of our programme theories. This new evidence will inform the design and development of the UCD PPI Ignite program focused on ensuring sustained reciprocal partnerships. 409
- PublicationSpeaking Up About Adult Harm: Options for Policy and Practice in the Irish Context(University College Dublin, 2018-03)
;Current mechanisms for responding to the prevention and the protection of adults at risk of abuse in Ireland can be described as ad hoc and reactionary. For example, media reports exposing cases of abuse and neglect, such as Leas Cross and Áras Attracta, have resulted in the introduction of new safeguarding policies and inspection regulations. Whilst the current measures in place to identify and prevent harm and potential harm to adults at risk offer some protection, it is evident that deeply embedded resistance to cultural change within institutions and organisations demand that safeguarding procedures need to be placed on a statutory basis to ensure the safeguarding process is applied in a consistent and effective way. 832
- PublicationSurvey of Bereaved Relatives:Voices MaJam(Mater Misericordiae University Hospital and St. James's Hospital, UCD and TCD., 2017-06)
; ; ; ;End-of-life care is an experience that touches the lives of everyone on a personal or professional level. Of all people that will die in Ireland this year, 43% will die in adult acute hospital settings. Acute hospitals are busy places with a predominant focus on diagnosis, treatment and cure. However, caring for people who are seriously ill is also an important responsibility. The Mater Misericordiae University Hospital and St. James’s Hospital are striving to ensure that people who are diagnosed with a life-limiting illness or who die in our care, experience a place of sanctuary where they are cared for in comfort and dignity and their families are supported in their bereavement. The Mater Misericordiae University Hospital and St. James’s Hospital have targeted end- of-life care as an area for improving the quality of care for patients and their families. To enable this, both hospitals have actively sought to improve end-of-life care through their active participation in the Hospice Friendly Hospitals Programme, an initiative of the Irish Hospice Foundation. Measuring the quality of care provided is recognised as being fundamental to quality assurance and provides information to further enhance patient and family care. This study sought to ascertain the quality of care provided to patients and their families during their last admission to hospital from the perspective of bereaved relatives. 215
- PublicationFalling Through the Cracks: The case for change. Key developments and next steps for Adult Safeguarding in Ireland(University College Dublin, 2019-12-11)
;Adults are at risk of and experiencing harm and abuse all over Ireland, and for a variety of reasons including psychological, physical and financial abuse. According to a report commissioned by the Banking & Payments Federation Ireland (BPFI), entitled ‘Financial Abuse in Ireland, 2019’, 20% of adults have experienced financial abuse and physical abuse of vulnerable adults has been witnessed/suspected by 1 in 3 adults. Last year there were 11,780 safeguarding concerns received by HSE Safeguarding and Protection Teams across Ireland according to the National Safeguarding Office Annual Report. This study sets out to explore how the absence of Adult Safeguarding legislation in the Irish context may be impacting on adults within the current safeguarding system from the perspective of social work practitioners, professionals or advocates who are working with them. The study seeks to shed light on how practitioners are navigating cases in the absence of primary legislation and to explore what benefits or challenges there might be should Adult Safeguarding legislation be fully enacted in the Irish context. 951
- PublicationEthics and Ethical Decision-Making in Adult Safeguarding Practice(2019-10-15)Invited Keynote presentation to HSE National Safeguarding Office Annual Learning Forum.
- PublicationCare Planning Meetings with Older People: Issues for Policy, Social Work Practice and Patient Participation Symposium on Decision-Making Practices in Gerontological Social Work ESWRA 2019, Leuven(University College Dublin, 2019-04-11)In recent years there have been national and international policy advances around capacity and decision-making and an apparent burgeoning human rights-based approach to the issue all of which have the potential to impact on the experiences of older people. There is little evidence however on whether these policies and principles are being translated into gerontological social work practice and whether traditional paternalistic approaches to decision-making are being challenged within our professional social justice remit. Although Care-Planning Meetings (CPMs) are an increasingly common part of gerontological social work within multidisciplinary teams (MDTs), it is uncertain how, and by whom, the voice and wishes of older people, including those with a cognitive impairment, are given due priority. In addition, there is little professional guidance on how to best plan and facilitate CPMs for older patients with cognitive and communication deficits and other often complex needs. An added challenge is the wide, often diverse, and conflicting range of perspectives held by health and social care professionals and other family members who may be involved in the decision-making process. The purpose of this presentation is to draw on best practices within the research literature as well empirical research on CPMs with older people carried out in the Irish context. This research highlights considerable variability in how older people participate and are involved in decision-making around their care. The findings show that family dynamics and existing relationships can also play a role in how older people participate and are involved. The facilitators and barriers to effective participation and decision-making for older people are considered and best practice guidelines for social workers in CPMs will be discussed which could help promote an individualised approach to participation that best reflects the older person’s will and preferences.