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  5. What are the mechanisms that enable the reciprocal involvement of seldom heard groups in health and social care research? A rapid realist review protocol
 
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What are the mechanisms that enable the reciprocal involvement of seldom heard groups in health and social care research? A rapid realist review protocol

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Author(s)
Ní Shé, Éidín 
Davies, Carmel 
Blake, Catherine 
Crowley, Rachel 
McCann, Amanda 
Fullen, Brona M. 
O'Donnell, Deirdre 
Donnelly, Sarah 
McAuliffe, Eilish 
Gallagher, William M. 
Walsh, Judy 
Kodate, Naonori 
Cutlar, Laura 
Cooney, Marie Therese 
Kroll, Thilo 
et al. 
Uri
http://hdl.handle.net/10197/9871
Date Issued
February 2018
Date Available
09T11:49:57Z April 2019
Abstract
Background: The University College Dublin (UCD) PPI Ignite Connect Network will fundamentally embed public and patient involvement (PPI) in health-related research, education and training, professional practice and administration in UCD’s institutional structures and procedures. A significant focus of the programme of work is on actively engaging and developing long-term reciprocal relationships with seldom heard groups, via our ten inaugural partners. Methods: This rapid realist review will explore what are the mechanisms that are important in actively engaging seldom heard groups in health and social care research. The review process will follow five iterative steps: (1) clarify scope, (2) search for evidence, (3) appraise primary studies and extract data, (4) synthesise evidence and draw conclusions, and (5) disseminate findings. The reviewers will consult with expert and reference panels to focus the review, provide local contextual insights and develop a programme theory consisting of context–mechanism–outcome configurations. The expert panel will oversee the review process and agree, via consensus, the final programme theory. Review findings will follow the adopted RAMESES guideline and will be disseminated via a report, presentations and peer-reviewed publication. Discussion: The review will update and consolidate evidence on the mechanisms that enable the reciprocal engagement and participation of ‘seldom heard’ groups in health and social care research. Via the expert and reference process, we will draw from a sizeable body of published and unpublished research and grey literature. The local contextual insights provided will aid the development of our programme theories. This new evidence will inform the design and development of the UCD PPI Ignite program focused on ensuring sustained reciprocal partnerships.
Type of Material
Journal Article
Publisher
Health Research Board
Journal
HRB Open Res 2018
Volume
1
Issue
7
Copyright (Published Version)
2018 the Authors
Keywords
  • Public and Patient In...

  • Co-design

  • Engaged research

  • Capacity building

  • Rapid realist review

  • Seldom heard groups

  • Protocol study

DOI
10.12688/hrbopenres.12790.1
Language
English
Status of Item
Peer reviewed
This item is made available under a Creative Commons License
https://creativecommons.org/licenses/by-nc-nd/3.0/ie/
Owning collection
Nursing, Midwifery & Health Systems Research Collection
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Feb 2, 2023
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