“What Bothers Me Most Is the Disparity between the Choices that People Have or Don’t Have”: A Qualitative Study on the Health Systems Responsiveness to Implementing the Assisted Decision-Making (Capacity) Act in Ireland

DC FieldValueLanguage
dc.contributor.authorNí Shé, Éidín-
dc.contributor.authorO'Donnell, Deirdre-
dc.contributor.authorDonnelly, Sarah-
dc.contributor.authorDavies, Carmel-
dc.contributor.authorFattori, Francesco-
dc.contributor.authorKroll, Thilo-
dc.date.accessioned2021-02-16T16:31:07Z-
dc.date.available2021-02-16T16:31:07Z-
dc.date.copyright2020 the Authorsen_US
dc.date.issued2020-05-09-
dc.identifier.citationInternational Journal of Environmental Research and Public Healthen_US
dc.identifier.issn1660-4601-
dc.identifier.urihttp://hdl.handle.net/10197/11953-
dc.description.abstractObjective: The Assisted Decision-Making (ADM) (Capacity) Act was enacted in 2015 inIreland and will be commenced in 2021. This paper is focused on this pre-implementation stage withinthe acute setting and uses a health systems responsiveness framework. Methods: We conductedface-to-face interviews using a critical incident technique. We interviewed older people includingthose with a diagnosis of dementia (n=8), family carers (n=5) and health and social care professionals(HSCPs) working in the acute setting (n=26). Results: The interviewees reflected upon a healthcaresystem that is currently under significant pressures. HSCPs are doing their best, but they are oftenhalted from delivering on the will and preference of their patients. Many older people and familycarers feel that they must be very assertive to have their preferences considered. All expressedconcern about the strain on the healthcare system. There are significant environmental barriers thatare hindering ADM practice. Conclusions: The commencement of ADM provides an opportunityto redefine the provision, practices, and priorities of healthcare in Ireland to enable improvedpatient-centred care. To facilitate implementation of ADM, it is therefore critical to identify andprovide adequate resources and work towards solutions to ensure a seamless commencement ofthe legislation.>en_US
dc.description.sponsorshipHealth Research Boarden_US
dc.language.isoenen_US
dc.publisherMDPIen_US
dc.rightsThis article is an open accessarticle distributed under the terms and conditions of the Creative Commons Attribution(CC BY) license (http://creativecommons.org/licenses/by/4.0/).en_US
dc.subjectAssisted decision makingen_US
dc.subjectSupported decision makingen_US
dc.subjectHealth system responsivenessen_US
dc.subjectQualitativeen_US
dc.subjectPerson centred-careen_US
dc.subjectPublic and patient involvementen_US
dc.title“What Bothers Me Most Is the Disparity between the Choices that People Have or Don’t Have”: A Qualitative Study on the Health Systems Responsiveness to Implementing the Assisted Decision-Making (Capacity) Act in Irelanden_US
dc.typeJournal Articleen_US
dc.internal.authorcontactothereidin.nishe@ucd.ieen_US
dc.statusPeer revieweden_US
dc.identifier.volume17en_US
dc.identifier.issue9en_US
dc.identifier.startpage3294en_US
dc.identifier.endpage3294en_US
dc.identifier.doi10.3390/ijerph17093294-
dc.neeo.contributorNí Shé|Éidín|aut|-
dc.neeo.contributorO'Donnell|Deirdre|aut|-
dc.neeo.contributorDonnelly|Sarah|aut|-
dc.neeo.contributorDavies|Carmel|aut|-
dc.neeo.contributorFattori|Francesco|aut|-
dc.neeo.contributorKroll|Thilo|aut|-
dc.date.updated2020-05-12T05:26:54Z-
dc.identifier.grantidAPA-2016-1878-
dc.rights.licensehttps://creativecommons.org/licenses/by/3.0/ie/en_US
item.fulltextWith Fulltext-
item.grantfulltextopen-
Appears in Collections:Nursing, Midwifery & Health Systems Research Collection
Social Policy, Social Work and Social Justice Research Collection
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