What are the mechanisms that enable the reciprocal involvement of seldom heard groups in health and social care research? A rapid realist review protocol

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Title: What are the mechanisms that enable the reciprocal involvement of seldom heard groups in health and social care research? A rapid realist review protocol
Authors: Ní Shé, Éidín
Davies, Carmel
Blake, Catherine
Crowley, Rachel
McCann, Amanda
Fullen, Brona M.
O'Donnell, Deirdre
Donnelly, Sarah
McAuliffe, Eilish
Gallagher, William M.
Walsh, Judy
Kodate, Naonori
Cutlar, Laura
Cooney, Marie Therese
Kroll, Thilo
et al.
Permanent link: http://hdl.handle.net/10197/9871
Date: Feb-2018
Online since: 2019-04-09T11:49:57Z
Abstract: Background: The University College Dublin (UCD) PPI Ignite Connect Network will fundamentally embed public and patient involvement (PPI) in health-related research, education and training, professional practice and administration in UCD’s institutional structures and procedures. A significant focus of the programme of work is on actively engaging and developing long-term reciprocal relationships with seldom heard groups, via our ten inaugural partners. Methods: This rapid realist review will explore what are the mechanisms that are important in actively engaging seldom heard groups in health and social care research. The review process will follow five iterative steps: (1) clarify scope, (2) search for evidence, (3) appraise primary studies and extract data, (4) synthesise evidence and draw conclusions, and (5) disseminate findings. The reviewers will consult with expert and reference panels to focus the review, provide local contextual insights and develop a programme theory consisting of context–mechanism–outcome configurations. The expert panel will oversee the review process and agree, via consensus, the final programme theory. Review findings will follow the adopted RAMESES guideline and will be disseminated via a report, presentations and peer-reviewed publication. Discussion: The review will update and consolidate evidence on the mechanisms that enable the reciprocal engagement and participation of ‘seldom heard’ groups in health and social care research. Via the expert and reference process, we will draw from a sizeable body of published and unpublished research and grey literature. The local contextual insights provided will aid the development of our programme theories. This new evidence will inform the design and development of the UCD PPI Ignite program focused on ensuring sustained reciprocal partnerships.
Type of material: Journal Article
Publisher: Health Research Board
Journal: HRB Open Res 2018
Volume: 1
Issue: 7
Copyright (published version): 2018 the Authors
Keywords: Public and Patient InvolvementCo-designEngaged researchCapacity buildingRapid realist reviewSeldom heard groupsProtocol study
DOI: 10.12688/hrbopenres.12790.1
Language: en
Status of Item: Peer reviewed
Appears in Collections:Conway Institute Research Collection
Nursing, Midwifery & Health Systems Research Collection
Medicine Research Collection
Public Health, Physiotherapy and Sports Science Research Collection
Social Policy, Social Work and Social Justice Research Collection

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