Now showing 1 - 2 of 2
  • Publication
    The Burden of a Remote Trial in a Nursing Home Setting: Qualitative Study
    Background: Despite an aging population, older adults are typically underrecruited in clinical trials, often because of the perceived burden associated with participation, particularly travel associated with clinic visits. Conducting a clinical trial remotely presents an opportunity to leverage mobile and wearable technologies to bring the research to the patient. However, the burden associated with shifting clinical research to a remote site requires exploration. While a remote trial may reduce patient burden, the extent to which this shifts burden on the other stakeholders needs to be investigated. Objective: The aim of this study was to explore the burden associated with a remote trial in a nursing home setting on both staff and residents. Methods: Using results from a grounded analysis of qualitative data, this study explored and characterized the burden associated with a remote trial conducted in a nursing home in Dublin, Ireland. A total of 11 residents were recruited to participate in this trial (mean age: 80 years; age range: 67-93 years). To support research activities, we also recruited 10 nursing home staff members, including health care assistants, an activities co-ordinator, and senior nurses. This study captured the lived experience of this remote trial among staff and residents and explored the burden associated with participation. At the end of the trial, a total of 6 residents and 8 members of staff participated in semistructured interviews (n=14). They reviewed clinical data generated by mobile and wearable devices and reflected upon their trial-related experiences. Results: Staff reported extensive burden in fulfilling their roles and responsibilities to support activities of the trial. Among staff, we found eight key characteristics of burden: (1) comprehension, (2) time, (3) communication, (4) emotional load, (5) cognitive load, (6) research engagement, (7) logistical burden, and (8) product accountability. Residents reported comparatively less burden. Among residents, we found only four key characteristics of burden: (1) comprehension, (2) adherence, (3) emotional load, and (4) personal space. Conclusions: A remote trial in a nursing home setting can minimize the burden on residents and enable inclusive participation. However, it arguably creates additional burden on staff, particularly where they have a role to play in locally supporting and maintaining technology as part of data collection. Future research should examine how to measure and minimize the burden associated with data collection in remote trials.
      670ScopusĀ© Citations 12
  • Publication
    Local and national belonging in a globalised world : the case of contemporary Ireland
    (Manchester University Press, 2011-11) ;
    The question of place is becoming more important in an increasingly globalised, cosmopolitan world. Has the global flow of culture and the movement of people around the world meant a decline in the importance of place as a form of identity? Have local, regional and national identities lost their significance for people? The article begins to explore these key issues. In particular it looks at Ireland which, from the 1990s, moved from being relatively insular and homogeneous to becoming one of the most globalised societies. The authors use a mixed method approach. First they examine data from the International Social Survey Project (ISSP) to see if there is any evidence of a decline in identity with place, how this varies between rural and urban dwellers, and levels of age and education. They then use findings from a qualitative study to examine the complex ways in which people talk about and identify with place, where they were brought up, where they live now and being Irish. The findings show that level of identity with place is still strong in Ireland and in some cases is increasing. The authors argue that increased identification with the local is an equal and opposite reaction to globalisation.
      1148ScopusĀ© Citations 15