Using Patient Information for the Prediction of Caregiver Burden in Amyotrophic Lateral Sclerosis

The aim of this study is to create a Clinical Decision Support System (CDSS) to assist in the early identification and support of caregivers at risk of experiencing burden while caring for a person with Amyotrophic Lateral Sclerosis. We work towards a system that uses a minimum amount of data that could be routinely collected. We investigated if the impairment of patients alone provides sufficient information for the prediction of caregiver burden. Results reveal a better performance of our system in identifying those at risk of high burden, but more information is needed for an accurate CDSS.